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Her Final Year: A Memoir

  • Posted on: 9 March 2011
  • By: GreyHawk

It's now official. My co-author Shadan7 and I, along with our wives, have decided to self-publish our book about our experiences caring for our respective mothers-in-law as they slowly succumbed to Alzheimer's Disease.

The book's title is Her Final Year. Why that title? Because it fits - in several ways. Particularly if you regard the "year" as a metaphor. I'll excerpt from the link above, as Shadan7's explanation for the metaphor sums it up nicely:

The idea for the book – the metaphor, if you will – is that you can consider Alzheimer's progression and impact on a life as something of a whole. Just as the seasons progress, just as the days and weeks and months follow one after another in a fairly seamless manner through the course of a year, so does the disease advance. January starts with hope for a new year, in December you're looking back at how things actually unfolded. You can predict, in general terms, what the weather will be like from month to month – but you can still have a glorious sunny day the week of Christmas, just as you can have a grim and cold weekend in September.

Likewise, someone suffering from dementia can have good days and bad days, even as the general trend of the disease moves relentlessly on to a known conclusion. Furthermore, in no two people will the disease progress in exactly the same way.

Therefore, in order to make our book the most useful to other people, we've arranged the "months" according to the general progression of the disease, and then we've placed individual entries – drawn from email correspondence, blog posts and Live Journal entries – into the "month" where it most seems to fit. There is a general tendency for those entries to follow an actual chronological progression, but it happens that sometimes they don't match up that way. In addition, things are time-compressed: the actual experiences we’re relating happened over roughly four years, but in order to make the most sense of them they've been fit into this one-year framework.

Hence, Her Final Year. Incidentally, the last third or so of the book is a whole other section titled His First Year, dealing with the impact of the caregiving and subsequent recovery from it.

 

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